Skip to main content

Neuronote #5

For my last neuronote I decided to write about the book The Reason I Jump. I had to read this book for a SPED class in undergrad and decided to re-read portions that I had originally marked as reading it the first time. When I read this book it made me completely change my thought process about how those who have autism experience life. I never once stopped to think how they actually view life and everything around them.

The book is an autobiography written by a 13-year-old boy from Japan about what it is like to live with autism. The way autistic people view the world is very different than the way we may perceive them to view the world. This disconnect between how we view and treat people with autism and how they actually view the world makes living with autism is even more difficult than it already is. The book really made me question who is actually different. I feel like his perspective on life is so much more pure than my own and so much more beautiful. My biggest takeaway was that when it comes to many everyday circumstances Higashida (the author) actually gets it, but he can't act on it. Perhaps I was just ignorant about autism, but I feel that we often assume that people with autism are “out of it” and aren't really following what's going on. And how would we know when we have no outward or physical indication otherwise? But he does understand, he does get it, and he is no different than you or me. He knows what is happening even if he can't take appropriate action. I believe anyone who is pursuing a career in occupational therapy should be required to read this beautiful work of art because that’s exactly what I believe this book is.

Comments

Popular posts from this blog

NeuroNote #1

For my first Neuro-Note I decided to watch the documentary Transfatty Lives and boy was it eye-opening. The documentary is about a 30 year old man named Patrick O’Brien, who has just been diagnosed with Amyotrophic Lateral Sclerosis (ALS). This film did an incredible job portraying every single aspect of what living with ALS is actually like. Before his diagnosis Patrick was a DJ in New York City, an internet personality, as well as a filmmaker. From what it seemed Patrick was the life of the party just about wherever he went. He was in the process of shooting a film when he was diagnosed with ALS and decided to turn the cameras to portray what his life would become. This film truly made me think about how I would handle or approach coming to terms with something like ALS. I do know that there is no way I would be able to remain as happy and as upbeat as Patrick did, nor could I continue to make everyone around me continue to smile the way he did. His story was so inspirational, not...

Blog Post Challenge #8

For class today, we were asked to listen to a podcast before class titled The First Cow. The speaker was Abeny Kucha, a woman from southeastern Africa who has an amazing story. Her village was destroyed by war and for years she bounced from refugee camp to refugee camp walking and traveling for over eight years. Luckily she and her family made it to America. Listening to her story really opened my eyes to just how lucky I am to have the life that I have. When they first arrived they were taken to this apartment and told it was their new home… she expressed that the word home meant more to her than most could understand. Her children had never had a home, they had never been able to sleep in peace without any worry. She spoke of how they had no idea what orange soda was or what a fire alarm was, things that you never even second guess or need to think about can be completely foreign to others. She also mentioned how they had two couches in the living room and how no...

Katelyn Grammes: ALS

Katelyn did her presentation on Steve Gleason who is a previous NFL player who now has ALS.  ALS, or amyotrophic laterals sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.  There are two different types of ALS, sporadic and familial. Sporadic, which is the most common form of the disease in the U.S., accounts for 90 to 95 percent of all cases. It may affect anyone, anywhere. Familial ALS  accounts for 5 to 10 percent of all cases in the U.S. Familial ALS means the disease is inherited. In those families, there is a 50% chance each offspring will inherit the gene mutation and may develop the disease  Shortly after being diagnosed Steve decided to turn his experience into a documentary. He also started an ALS foundation. Katelyn was very prepared and also did an excellent job on her powerpoint and presentation. One really cool thing I learned was that he has a state of the art power-wheelchair that he contr...